June 3, 2023
Day + 43
Several folks have contacted me, worried that I haven't posted anything to my blog in a few days. I think not posting so often may be a sign that I'm returning to my more usual routines.
I'm still plugging away day by day, mostly doing fine. I've been spending a fair amount of time getting my labs done, . . .
May 24, 2023
Day + 34
My bone marrow biopsy results came in, and the news was good. I’ve gone from having 40% cancerous myeloma plasma cells before CAR-T to less than 1%. Evidence that my bioengineered T-cells are doing their job. They can't predict how long the CAR-T will work -- that is, how long the cancer will stay low or even become nearly . . .
May 21, 2023
Day + 31
There's no place like home!
I've been sitting in different rooms of my house, just taking it all in. My appetite is pretty much back to normal, and I no longer have any food restrictions. I'm trying to gain back the 35 pounds I've lost over the past few months, but they warned me it would be a . . .
May 18, 2023
Day + 28.
The day is finally here! Going home today! It turns out I don’t need to wait for my bone marrow biopsy results as they take a week or more. After I see the Stanford team this afternoon, Eva and I are all packed and ready to head for the East Bay. Home!!!
The bone marrow exam yesterday was more complicated than . . .
May 15, 2023
Day + 25
After a relaxing weekend without being stuck, prodded or infused, today it was back to the clinic. Possibly one of the last times before final preparations and decisions about sending me home.
I’m already compiling lists of things I need to do when I get home, appointments, timelines, meds to review… Whoa! Plenty of time to . . .
May 14, 2023
Day + 24
May 13, 2023
Day + 23
We took a drive then a walk up in the hills above Palo Alto. I’m making progress as far as being able to walk without my walker while still relying on Eva’s steady arm. We covered a little over a mile. As we were walking along, I started remembering all the wildflowers we came across: Blue-eyed Grass, California . . .